'Urgent need to raise awareness about rare diseases' / Is this the new playbook for curing rare childhood diseases? / Rare diseases policy set for expansion to include rare dermatological conditions / Lack of understanding hinders rare diseases treatment: CDFD / Mpox: America reports first case of new form of rare disease / Girl's life saved by pioneering rare diseases study / First-of-its-kind discovery finds way to diagnose rare diseases, birth disorders / Scientists in Spain discover new rare disease in adults that was previously only found in children / New Chinese databases are a boost for rare-disease science